Background
Research on the outcomes of medical therapy in persons with pulmonary artery hypertension
(PAH) has increased as new therapeutic options have emerged. Little investigation
has been done on the impact of living with PAH despite inferences that quality of
life (QOL) improves.
Purpose
The purpose of this qualitative study was to describe patient experiences of living
with PAH and identify factors that may have an impact on QOL.
Participants
Participants (n = 11; 8 women, 3 men) were selected from among 42 adult patients,
40 to 72 years of age, followed in an outpatient setting at a tertiary care hospital.
Multiple types of treatment modalities were represented including calcium channel
blockers, endothelin-receptor antagonists, prostacyclin analog, and lung transplantation.
Methods
Semistructured interviews allowed participants to describe experiences living with
PAH. Interviews were recorded on audiotape and transcribed verbatim. Analysis was
conducted in accordance with Colaizzi’s 7-step process for analysis of phenomenologic
data.
Results
Two overarching themes emerged indicating that participants experience uncertainty
associated with a variety of aspects of this illness but also learn to cope with this
uncertainty and move on with their lives.
Implications
Assisting patients to cope with the uncertainty associated with this chronic health
problem is essential if patients are to successfully adjust to the demands of the
illness and its treatment. Attention to the findings of this study should guide health
care professionals in their efforts to improve QOL in this patient population.
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© 2005 Mosby, Inc. Published by Elsevier Inc. All rights reserved.
