Heart & Lung: The Journal of Acute and Critical Care
Volume 38, Issue 6 , Pages 499-512 , November 2009

Feasibility of a group-based self-management program among congestive heart failure patients

  • Esther S.T.F. Smeulders, MSc

      Affiliations

    • Department of Health Care and Nursing Science, School for Public Health and Primary Care: CAPHRI, Maastricht University, Maastricht, The Netherlands
    • Corresponding Author InformationReprint requests: Esther S. T. F. Smeulders, MSc, Department of Health Care and Nursing Science, School for Public Health and Primary Care: CAPHRI, Maastricht University, P.O. Box 616, 6200 MD Maastricht, The Netherlands
    • ,
  • Jolanda C.M. van Haastregt, PhD

      Affiliations

    • Department of Health Care and Nursing Science, School for Public Health and Primary Care: CAPHRI, Maastricht University, Maastricht, The Netherlands
    • ,
  • Josiane J.J. Janssen-Boyne, RN, MA

      Affiliations

    • Department of Integrated Care, Department of Cardiology, University Hospital Maastricht, Maastricht, The Netherlands
    • ,
  • Henri E.J.H. Stoffers, MD, PhD

      Affiliations

    • Department of General Practice, School for Public Health and Primary Care: CAPHRI, Maastricht University, Maastricht, The Netherlands
    • ,
  • Jacques Th.M. van Eijk, PhD

      Affiliations

    • Department of Health Care and Nursing Science, School for Public Health and Primary Care: CAPHRI, Maastricht University, Maastricht, The Netherlands
    • ,
  • Gertrudis I.J.M. Kempen, PhD

      Affiliations

    • Department of Health Care and Nursing Science, School for Public Health and Primary Care: CAPHRI, Maastricht University, Maastricht, The Netherlands

References 

  1. Clark RA, McLennan S, Dawson A, Wilkinson D, Stewart S. Uncovering a hidden epidemic: a study of the current burden of heart failure in Australia. Heart Lung Circ. 2004;13:266–273
  2. Stewart S, MacIntyre K, Capewell S, McMurray JJ. Heart failure and the aging population: an increasing burden in the 21st century?. Heart. 2003;89:49–53
  3. Thomas S, Rich MW. Epidemiology, pathophysiology, and prognosis of heart failure in the elderly. Clin Geriatr Med. 2007;23:1–10
  4. van Jaarsveld CH, Ranchor AV, Kempen GI, Coyne JC, van Veldhuisen DJ, Sanderman R. Epidemiology of heart failure in a community-based study of subjects aged ≥57 years: incidence and long-term survival. Eur J Heart Fail. 2006;8:23–30
  5. Mosterd A, Cost B, Hoes AW, de Bruijne MC, Deckers JW, Hofman A, et al. The prognosis of heart failure in the general population: the Rotterdam Study. Eur Heart J. 2001;22:1318–1327
  6. Heo S, Moser DK, Lennie TA, Zambroski CH, Chung ML. A comparison of health-related quality of life between older adults with heart failure and healthy older adults. Heart Lung. 2007;36:16–24
  7. Creer TL, Renne CM, Christian WP. Behavioral contributions to rehabilitation and childhood asthma. Rehabil Lit. 1976;37:226–247
  8. Lorig KR, Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26:1–7
  9. Riegel B, Dickson VV. A situation-specific theory of heart failure self-care. J Cardiovasc Nurs. 2008;23:190–196
  10. Moser DK, Watkins JF. Conceptualizing self-care in heart failure: a life course model of patient characteristics. J Cardiovasc Nurs. 2008;23:205–218
  11. Deaton C. Outcome measurement: self-management in heart failure. J Cardiovasc Nurs. 2000;14:116–118
  12. Jaarsma T, Stromberg A, Martensson J, Dracup K. Development and testing of the European Heart Failure Self-Care Behaviour Scale. Eur J Heart Fail. 2003;5:363–370
  13. Belardinelli R, Georgiou D, Cianci G, Purcaro A. Randomized, controlled trial of long-term moderate exercise training in chronic heart failure: effects on functional capacity, quality of life, and clinical outcome. Circulation. 1999;99:1173–1182
  14. Lorig K, Holman H, Sobel D, Laurent D, Gonzalez V, Minor M. Living a healthy life with chronic conditions: self-management of heart disease, arthritis, diabetes, asthma, bronchitis, emphysema and others. 2nd ed.. Boulder, CO: Bull Publishing Company; 2000;
  15. Evangelista LS, Shinnick MA. What do we know about adherence and self-care?. J Cardiovasc Nurs. 2008;23:250–257
  16. van der Wal MH, Jaarsma T. Adherence in heart failure in the elderly: problem and possible solutions. Int J Cardiol. 2008;125:203–208
  17. Riegel B, Carlson B. Facilitators and barriers to heart failure self-care. Patient Educ Couns. 2002;46:287–295
  18. Scott LD, Setter-Kline K, Britton AS. The effects of nursing interventions to enhance mental health and quality of life among individuals with heart failure. Appl Nurs Res. 2004;17:248–256
  19. Harrison MB, Browne GB, Roberts J, Tugwell P, Gafni A, Graham ID. Quality of life of individuals with heart failure: a randomized trial of the effectiveness of two models of hospital-to-home transition. Med Care. 2002;40:271–282
  20. GESICA investigators. Randomised trial of telephone intervention in chronic heart failure: DIAL trial. Br Med J. 2005;331(7514):425
  21. Ojeda S, Anguita M, Delgado M, Atienza F, Rus C, Granados AL, et al. Short- and long-term results of a programme for the prevention of readmissions and mortality in patients with heart failure: are effects maintained after stopping the programme?. Eur J Heart Fail. 2005;7:921–926
  22. Gwadry-Sridhar FH, Arnold JM, Zhang Y, Brown JE, Marchiori G, Guyatt G. Pilot study to determine the impact of a multidisciplinary educational intervention in patients hospitalized with heart failure. Am Heart J. 2005;150:982
  23. de la Porte PW, Lok DJ, van Veldhuisen DJ, van Wijngaarden J, Cornel JH, Zuithoff NP, et al. Added value of a physician-and-nurse-directed heart failure clinic: results from the Deventer-Alkmaar heart failure study. Heart. 2007;93:819–825
  24. Shively M, Kodiath M, Smith TL, Kelly A, Bone P, Fetterly L, et al. Effect of behavioral management on quality of life in mild heart failure: a randomized controlled trial. Patient Educ Couns. 2005;58:27–34
  25. Doughty RN, Wright SP, Pearl A, Walsh HJ, Muncaster S, Whalley GA, et al. Randomized, controlled trial of integrated heart failure management: the Auckland Heart Failure Management Study. Eur Heart J. 2002;23:139–146
  26. Austin J, Williams R, Ross L, Moseley L, Hutchison S. Randomised controlled trial of cardiac rehabilitation in elderly patients with heart failure. Eur J Heart Fail. 2005;7:411–417
  27. Moser DK. Psychosocial factors and their association with clinical outcomes in patients with heart failure: why clinicians do not seem to care. Eur J Cardiovasc Nurs. 2002;1:183–188
  28. Konstam V, Moser DK, De Jong MJ. Depression and anxiety in heart failure. J Card Fail. 2005;11:455–463
  29. Lorig KR, Sobel DS, Stewart AL, Brown BW, Bandura A, Ritter P, et al. Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: a randomized trial. Med Care. 1999;37:5–14
  30. Lorig KR, Ritter P, Stewart AL, Sobel DS, Brown BW, Bandura A, et al. Chronic disease self-management program: 2-year health status and health care utilization outcomes. Med Care. 2001;39:1217–1223
  31. Lorig KR, Sobel DS, Ritter PL, Laurent D, Hobbs M. Effect of a self-management program on patients with chronic disease. Eff Clin Pract. 2001;4:256–262
  32. Bandura A. Self-efficacy: the exercise of control. New York, NY: Freeman; 1997;
  33. Swerissen H, Belfrage J, Weeks A, Jordan L, Walker C, Furler J, et al. A randomised control trial of a self-management program for people with a chronic illness from Vietnamese, Chinese, Italian and Greek backgrounds. Patient Educ Couns. 2006;64(1-3):360–368
  34. Siu AM, Chan CC, Poon PK, Chui DY, Chan SC. Evaluation of the chronic disease self-management program in a Chinese population. Patient Educ Couns. 2007;65:42–50
  35. Lorig KR, Ritter PL, Jacquez A. Outcomes of border health Spanish/English chronic disease self-management programs. Diabetes Educ. 2005;31:401–409
  36. Lorig KR, Ritter PL, Gonzalez VM. Hispanic chronic disease self-management: a randomized community-based outcome trial. Nurs Res. 2003;52:361–369
  37. Lorig KR, Hurwicz ML, Sobel D, Hobbs M, Ritter PL. A national dissemination of an evidence-based self-management program: a process evaluation study. Patient Educ Couns. 2005;59:69–79
  38. Fu D, Fu H, McGowan P, Shen YE, Zhu L, Yang H, et al. Implementation and quantitative evaluation of chronic disease self-management programme in Shanghai, China: randomized controlled trial. Bull World Health Organ. 2003;81:174–182
  39. Chan SC, Siu AM, Poon PK, Chan CC. Chronic disease self-management program for Chinese patients: a preliminary multi-baseline study. Int J Rehabil Res. 2005;28:351–354
  40. Kempen GI, Sanderman R, Miedema I, Meyboom-de Jong B, Ormel J. Functional decline after congestive heart failure and acute myocardial infarction and the impact of psychological attributes (A prospective study). Qual Life Res. 2000;9:439–450
  41. Wu JR, Moser DK, Lennie TA, Burkhart PV. Medication adherence in patients who have heart failure: a review of the literature. Nurs Clin North Am. 2008;43:133–153
  42. Smeulders ES, van Haastregt JC, Dijkman-Domanska BK, van Hoef EF, van Eijk JT, Kempen GI. Nurse- and peer-led self-management programme for patients with an implantable cardioverter defibrillator: a feasibility study. BMC Nurs. 2007;6:6
  43. Smeulders ES, van Haastregt JC, van Hoef EF, van Eijk JT, Kempen GI. Evaluation of a self-management programme for congestive heart failure patients: design of a randomised controlled trial. BMC Health Serv Res. 2006;6:91
  44. Lorig K, Gonzalez V, Laurent D. The chronic disease self-management program master trainer's guide. Palo Alto, CA: Stanford University; 1999;
  45. Elzen H, Slaets JP, Snijders TA, Steverink N. Evaluation of the chronic disease self-management program (CDSMP) among chronically ill older people in the Netherlands. Soc Sci Med. 2007;64:1832–1841
  46. Lorig K, Gonzalez V, Laurent D. The chronic disease self-management program master trainer's manual. Palo Alto, CA: Stanford University; 2006;
  47. Carlson B, Riegel B, Moser DK. Self-care abilities of patients with heart failure. Heart Lung. 2001;30:351–359
  48. Thompson DR. Improving end-of-life care for patients with chronic heart failure. Heart. 2007;93:901–902
  49. Murray SA, Boyd K, Kendall M, Worth A, Benton TF, Clausen H. Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community. Br Med J. 2002;325(7370):929
  50. Selman L, Harding R, Beynon T, Hodson F, Coady E, Hazeldine C, et al. Improving end-of-life care for patients with chronic heart failure: “Let's hope it'll get better, when I know in my heart of hearts it won't.”. Heart. 2007;93:963–967

PII: S0147-9563(09)00012-0

doi: 10.1016/j.hrtlng.2009.01.007

Heart & Lung: The Journal of Acute and Critical Care
Volume 38, Issue 6 , Pages 499-512 , November 2009

Article Tools