Heart & Lung: The Journal of Acute and Critical Care
Volume 37, Issue 4 , Pages 257-265 , July 2008

“They diagnosed bad heart”: A qualitative exploration of patients' knowledge about and experiences with heart failure

  • Keri L. Rodriguez, PhD

      Affiliations

    • Center for Health Equity Research and Promotion, Veterans Affairs Pittsburgh Healthcare System, Pittsburgh, Pennsylvania
    • Division of General Internal Medicine, Department of Medicine, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania
    • Corresponding Author InformationCorresponding author: Keri L. Rodriguez, PhD, Research Health Scientist, CHERP, VA Pittsburgh Healthcare System, 7180 Highland Drive (151C-H), Rm. 4083E, Pittsburgh, PA 15206.
    • ,
  • Cathleen J. Appelt, PhD

      Affiliations

    • Mental Illness Research, Education and Clinical Center, Veterans Affairs Pittsburgh Healthcare System, Pittsburgh, Pennsylvania
    • ,
  • Galen E. Switzer, PhD

      Affiliations

    • Center for Health Equity Research and Promotion, Veterans Affairs Pittsburgh Healthcare System, Pittsburgh, Pennsylvania
    • Division of General Internal Medicine, Department of Medicine, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania
    • Department of Psychiatry, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania
    • ,
  • Ali F. Sonel, MD

      Affiliations

    • Center for Health Equity Research and Promotion, Veterans Affairs Pittsburgh Healthcare System, Pittsburgh, Pennsylvania
    • Cardiology Division, Veterans Affairs Pittsburgh Healthcare System, Pittsburgh, Pennsylvania
    • Cardiovascular Institute, University of Pittsburgh, Pittsburgh, Pennsylvania
    • ,
  • Robert M. Arnold, MD

      Affiliations

    • Division of General Internal Medicine, Department of Medicine, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania
    • Section of Palliative Care and Medical Ethics, University of Pittsburgh, Pittsburgh, Pennsylvania
    • Institute to Enhance Palliative Care, University of Pittsburgh, Pittsburgh, Pennsylvania.

References 

  1. Zambroski CH. Qualitative analysis of living with heart failure. Heart Lung. 2003;32:32–40
  2. Heart Failure Guideline Panel. Consensus recommendations for heart failure. Am J Cardiol. 1999;83:124
  3. Holman H, Lorig K. Patients as partners in managing chronic disease (Partnership is a prerequisite for effective and efficient health care). BMJ. 2000;320:526–527
  4. Michie S, Miles J, Weinman J. Patient-centeredness in chronic illness: what is it and does it matter?. Patient Educ Couns. 2003;51:197–206
  5. Frederickson LG. Exploring information-exchange in consultation: the patients' view of performance and outcomes. Patient Educ Couns. 1995;25:237–246
  6. Gattellari M, Butow P, Tattersall M. Sharing decisions in cancer care. Soc Sci Med. 2001;52:1865–1878
  7. Stewart M. Effective physician-patient communication and health outcomes: a review. CMAJ. 1995;152:1423–1433
  8. Molleman E, Krabbendam PJ, Annyas AA, Koops HS, Sleijfer DT, Vermey A. The significance of the doctor-patient relationship in coping with cancer. Soc Sci Med. 1984;18:475–480
  9. Richards T. Chasms in communication. BMJ. 1990;301:1407–1408
  10. Cleary PD, McNeil BJ. Patient satisfaction as an indicator of quality of care. Inquiry. 1988;25:25–36
  11. Doering ER. Factors influencing inpatient satisfaction with care. Qual Rev Bull. 1983;9:291–299
  12. Williams SJ, Calnan M. Key determinants of consumer satisfaction with general practice. Fam Pract. 1991;8:237–242
  13. Kasteler J, Kane RL, Olsen DM, Thetford C. Issues underlying prevalence of “doctor-shopping” behavior. J Health Soc Behav. 1976;17:329–339
  14. Levinson W, Roter DL, Mullooly JP, Dull VT, Frankel RM. Physician-patient communication (The relationship with malpractice claims among primary care physicians and surgeons). JAMA. 1997;277:553–559
  15. Hobbs RE. Using BNP to diagnose, manage, and treat heart failure. Cleve Clin J Med. 2003;70:333–336
  16. Kuzel AJ. Sampling in qualitative inquiry. In:  Crabtree BF,  Miller WL editor. Doing qualitative research. Vol 3:Newbury Park, CA: Sage; 1992;
  17. Glaser BG. Doing grounded theory (Issues and discussions). Mill Valley, CA: Sociology Press; 1998;
  18. Glaser BG, Strauss AL. The discovery of grounded theory: strategies for qualitative research. Chicago: Aldine; 1967;
  19. Stemler SE. A comparison of consensus, consistency, and measurement approaches to estimating interrater reliability. PARE 2004; 9 http://PAREonline.net/getvn.asp?v=9&n=4Accessed October 11, 2007
  20. Artinian NT, Magnan M, Christian W, Lange MP. What do patients know about their heart failure?. Appl Nurs Res. 2002;15:200–208
  21. Bushnell FK. Self-care teaching for congestive heart failure patients. J Gerontol Nurs. 1992;18:27–32
  22. Butow PN, Kazemi JN, Beeney LJ, Griffin AM, Dunn SM, Tattersall MH. When the diagnosis is cancer: patient communication experiences and preferences. Cancer. 1996;77:2630–2637
  23. Chan AD, Reid GJ, Farvolden P, Deane ML, Bisaillon S. Learning needs of patients with congestive heart failure. Can J Cardiol. 2003;19:413–417
  24. Hagenhoff BD, Feutz C, Conn VS, Sagehorn KK, Moranville-Hunziker M. Patient education needs as reported by congestive heart failure patients and their nurses. J Adv Nurs. 1994;19:685–690
  25. Ni H, Nauman D, Burgess D, Wise K, Crispell K, Hershberger RE. Factors influencing knowledge of and adherence to self-care among patients with heart failure. Arch Intern Med. 1999;159:1613–1619
  26. Rogers AE, Addington-Hall JM, Abery AJ, et al. Knowledge and communication difficulties for patients with chronic heart failure: qualitative study. BMJ. 2000;321:605–607
  27. Roter D. Patient participation in the patient-provider interaction: the effects of patient question asking on the quality of interaction, satisfaction, and compliance. Health Ed Mono. 1977;5:281-15
  28. Roter DL, Hall JA. Doctors talking to patients/patients talking to doctors: improving communication in medical visits. Westport, CT: Auburn House; 1992;
  29. Baker DW, Asch SM, Keesey JW, et al. Differences in education, knowledge, self-management activities, and health outcomes for patients with heart failure cared for under the chronic disease model: the improving chronic illness care evaluation. J Card Fail. 2005;11:405–413
  30. Caldwell MA, Peters KJ, Dracup KA. A simplified education program improves knowledge, self-care behavior, and disease severity in heart failure patients in rural settings. Am Heart J. 2005;150:983
  31. Koelling TM, Johnson ML, Cody RJ, Aaronson KD. Discharge education improves clinical outcomes in patients with chronic heart failure. Circulation. 2005;111:179–185
  32. McCarthy M, Hall JA, Ley M. Communication and choice in dying from heart disease. J R Soc Med. 1997;90:128–131
  33. McCarthy M, Lay M, Addington-Hall J. Dying from heart disease. J R Coll Physicians Lond. 1996;30:325–328
  34. Formiga F, Chivite D, Ortega C, Casas S, Ramón JM, Pujol R. End-of-life preferences in elderly patients admitted for heart failure. QJM. 2004;97:803–808
  35. Fried TR, Bradley EH. What matters to seriously ill older persons making end-of-life treatment decisions? (A qualitative study). J Palliat Med. 2003;6:237–244
  36. Schnell KN, Naimark BJ, McClement SE. Influential factors for self-care in ambulatory care heart failure patients: a qualitative perspective. Can J Cardiovasc Nurs. 2006;16:13–19
  37. Caldwell MA, Peters KJ, Dracup KA. A simplified education program improves knowledge, self-care behavior, and disease severity in heart failure patients in rural settings. Am Heart J. 2005;150:983
  38. Koelling TM, Johnson ML, Cody RJ, Aaronson KD. Discharge education improves clinical outcomes in patients with chronic heart failure. Circulation. 2005;111:179–185
  39. Hobbs FD, Kenkre JE, Roalfe AK, Davis RC, Hare R, Davies MK. Impact of heart failure and left ventricular systolic dysfunction on quality of life: a cross-sectional study comparing common chronic cardiac and medical disorders and a representative adult population. Eur Heart J. 2002;23:1867–1876
  40. McAlister FA, Lawson FM, Teo KK, Armstrong PW. A systematic review of randomized trials of disease management programs in heart failure. Am J Med. 2001;110:378–384
  41. Rich MW, Beckham V, Wittenberg C, Leven CL, Freedland KE, Carney RM. A multidisciplinary intervention to prevent the readmission of elderly patients with congestive heart failure. N Engl J Med. 1995;333:1190–1195
  42. Morse J. Qualitative generalizability. Qual Health Res. 1999;9:5–6

 Disclaimer: The views expressed in this article are those of the authors and do not necessarily reflect the position or policy of the Department of Veterans Affairs.

 Financial Support: This work was supported in part by the following awards to Dr. Rodriguez: a Merit Review Entry Program Award from the Veterans Affairs (VA) Health Services Research and Development Office (MRP 04-410), a Minority Supplement Award from the National Cancer Institute (3R01 CA100387-03S1), and a grant from the Pilot Project Program of the Center for Health Equity Research and Promotion (LIP 981) and VA Stars and Stripes Healthcare Network 4 (VISN4).

PII: S0147-9563(07)00165-3

doi: 10.1016/j.hrtlng.2007.09.001

Heart & Lung: The Journal of Acute and Critical Care
Volume 37, Issue 4 , Pages 257-265 , July 2008

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