Heart & Lung: The Journal of Acute and Critical Care
Volume 34, Issue 5 , Pages 324-331 , September 2005

Living with cystic fibrosis: Impact on global quality of life

  • Astrid K. Wahl, PhD

      Affiliations

    • Oslo University College, Faculty of Nursing, Oslo, Norway
    • Corresponding Author InformationReprint requests: Astrid K Wahl, Oslo University College, Faculty of Nursing Education, PO Box 4, St Olavsplass, 0130 Oslo, Norway
    • ,
  • Tone Rustøen, PhD

      Affiliations

    • Oslo University College, Faculty of Nursing, Oslo, Norway
    • ,
  • Berit R. Hanestad, PhD

      Affiliations

    • University of Bergen, Department of Public Health and Primary Health Care, Bergen, Norway
    • ,
  • Eva Gjengedal, PhD

      Affiliations

    • University of Bergen, Department of Public Health and Primary Health Care, Bergen, Norway
    • ,
  • Torbjørn Moum, PhD

      Affiliations

    • Department of Behavioural Sciences in Medicine, University of Oslo, Oslo, Norway

References 

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  2. Hodson ME . Treatment of cystic fibrosis in the adult . Respiration . 2000;67:595–607
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  13. Bjørtuft ø , Geiran O . Lung transplantation in Norway (increasing discrepancy between number of candidates and donor organs) . Tidsskr Nor Lægeforen . 2003;123:3206–3209
  14. Definition and Classification of Severity. Global Initiative for Chronic Obstructive Lung Disease. Available at: http://www.oldcopd.com/exec_summary/summary_2001/clarity.html . Accessed January 8, 2003.
  15. Burckhardt CS , Woods SL , Schultz AA , Ziebarth DM . Quality of life of adults with chronic illness (a psychometric study) . Res Nurs Health . 1989;6:347–354
  16. Burckhardt CS , Archenholtz B , Bjelle A . Measuring the quality of life of women with rheumatoid arthritis or systemic lupus erythematosus (a Swedish version of the Quality of Life Scale [QOLS]) . Scand J Rheumatol . 1992;21:190–195
  17. Burckhardt CS , Archenholtz B , Bjelle A . Quality of life of women with systemic lupus erythematosus (a comparison with women with rheumatoid arthritis) . J Rheumatol . 1993;20:977–981
  18. Archenholtz B , Nordborg E , Bremell T . Lower level of education in young adults with arthritis starting in the early adulthood . Scand J Rheumatol . 2001;30:353–355
  19. Wahl A , Burckhardt C , Wiklund I , Hanestad BR . The Norwegian version of the Quality of Life Scale [QOLS-N]. A validation and reliability study in patients suffering from psoriasis . Scand J Caring Sci . 1998;12:215–222
  20. Wahl AK , Rustøen T , Hanestad BR , Lerdal A , Moum T . Quality of life in the general Norwegian population, measured by the Quality of Life Scale (QOLS-N) . Qual Life Res . 2004;13:1001–1009
  21. Schwartz CE , Sprangers MA . Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research . Soc Sci Med . 1999;48:1531–1548
  22. Sprangers MA , Schwartz CE . Integrating response shift into health-related quality of life research (a theoretical model) . Soc Sci Med . 1999;48:1507–1515
  23. Antonovsky A . Unraveling the mystery of health. How people manage stress and stay well . San Francisco: Jossey-Bass; 1988;
  24. Albrect GL , Devliegier PJ . The disability paradox (high quality of life against all odds) . Soc Sci Med . 1999;48:977–988
  25. Sirgy MJ . The psychology of QOL. Social Indicators Research series . 12. Boston: Kluwer Academic Publishers; 2002;

 The Norwegian Cystic Fibrosis Association and the Norwegian Nurse Association provided financial support.

PII: S0147-9563(05)00010-5

doi: 10.1016/j.hrtlng.2004.11.002

Heart & Lung: The Journal of Acute and Critical Care
Volume 34, Issue 5 , Pages 324-331 , September 2005

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