Heart & Lung: The Journal of Acute and Critical Care
Volume 34, Issue 2 , Pages 99-107 , March 2005

Living with pulmonary artery hypertension: Patients’ experiences

  • Maureen P. Flattery, RN, MS, ANP

      Affiliations

    • Cardiopulmonary Transplant Program, Richmond, Virginia, USA
    • Corresponding Author InformationAddress for reprints: Maureen P. Flattery, RN, MS, ANP, PO Box 980204, Richmond, VA 23298.
    • ,
  • Janet M. Pinson, RN, MSN, ACNP

      Affiliations

    • Division of Pulmonary and Critical Care, Department of Internal Medicine, Richmond, Virginia, USA
    • ,
  • Laura Savage, RN, MSN

      Affiliations

    • Division of Cardiothoracic Nursing, Virginia Commonwealth University Medical Center, Richmond, Virginia, USA
    • ,
  • Jeanne Salyer, RN, PhD

      Affiliations

    • Virginia Commonwealth University, School of Nursing, Richmond, Virginia, USA

References 

  1. Barst RJ , Rubin LJ , Long WA , McGoon MD , Rich S , Badesch DB , et al.   A comparison of continuous intravenous epoprostenol prostacyclin with conventional therapy for primary pulmonary hypertension . N Engl J Med . 1996;334:296–302
  2. McLaughlin VV , Genthner DE , Panella MM , Rich S . Reduction in pulmonary vascular resistance with long-term epoprostenol (prostacyclin) therapy in primary pulmonary hypertension . N Engl J Med . 1998;338:273–277
  3. Channick RN , Simonneau G , Sitbon O , Robbins IM , Frost A , Tapson VF , et al.   Effects of the dual endothelin-receptor antagonist bosentan in patients with pulmonary hypertension (a randomized placebo- controlled study) . Lancet . 2001;358:113–114
  4. Nagaya N , Shimizu Y , Satoh T , Oya H , Uematsu M , Kyotani S , et al.   Oral beraprost sodium improves exercise capacity and ventilatory efficiency in patients with primary or thromboembolic pulmonary hypertension . Heart . 2002;87(4):340–345
  5. Peloquin J , Robichaud-Ekstrand S , Pepin J . Quality of life perception by women suffering from stage III or IV primary pulmonary hypertension and receiving prostacyclin treatment . Can J Nurs Res . 1998;30(1):113–136
  6. Giorgi A . Phenomenology and psychological research . Pittsburgh (PA): Duquesne University Press; 1985;
  7. Morse JM . Qualitative research (issues in sampling) . In:  Chinn PL editors. Nursing research methodology (issues and implementation) . Rockville (MD): Aspen; 1986;p. 181–193
  8. Morse JM . Strategies for sampling . In:  Morse JM editors. Qualitative nursing research (a contemporary dialogue) . Newbury Park (CA): Sage; 1991;p. 127–145
  9. Rich S . A new classification of pulmonary hypertension . Adv Pulm Hyper. . 2002;1(1):3–6
  10. Morse JM . Designed funded qualitative research . In:  Denzin NK ,  Lincoln YS editor. Handbook of qualitative research . Thousand Oaks (CA): Sage; 1994;p. 220–235
  11. Colaizzi P . Psychological research as the phenomenologists view it . In:  Valle R ,  King M editor. Existential-phenomenological alternatives for psychology . New York: Oxford University Press; 1978;p. 48–71
  12. Strauss A . Qualitative analysis for social scientists . New York: Cambridge University; 1987;
  13. Mishel MH . The measurement of uncertainty in illness . Nurs Res . 1981;30:258–263
  14. Mishel MH . Reconceptualization of the uncertainty in illness theory . Image J Nurs Sch . 1991;22:256–262
  15. Barst RJ , Rubin LJ , Long WA , McGoon MD , Caldwell EJ , Long WA , et al.   Survival in primary pulmonary hypertension with long term continuous intravenous prostacyclin . Ann Intern Med . 1994;121:409–415
  16. Gordon JB , Barot LR , Fahey AL , Matthews MS . The internet as a source of information on breast augmentation . Plast Reconstr Surg . 2001;107(1):171–176
  17. Krempec J , Hall J , Biermann JS . Internet use by patients in orthopedic surgery . Iowa Orthop J . 2003;23:80–82
  18. Lee CT , Smith CA , Hall JM , Waters WB , Biermann JS . Bladder cancer facts (accuracy of information on the internet) . J Urol . 2003;170(5):1756–1760
  19. Metz JM , Devine P , DeNittis A , Jones H , Hampshire M , Goldwein J , et al.   A multi-institutional study of internet utilization by radiation oncology patients . Int J Radiat Oncol Biol Phys . 2003;56(4):1201–1205
  20. Peterson NW , Fretz PC . Patient use of the internet for information in a lung cancer clinic . Chest . 2003;123(2):452–457
  21. Madan AK , Frantzides CT , Pesce CE . The quality of information about laparoscopic bariatric surgery on the Internet . Surg Endosc . 2003;17(5):685–687
  22. Satterlund MJ , McCaul KD , Sandgren AK . Information gathering over time by breast cancer patients . J Med Internet Res . 2003;5(3):e15
  23. Riches G , Dawson P . Lost children, living memories (the role of photographs in processes of grief and adjustment among bereaved parents) . Death Stud . 1998;22(2):121–140
  24. Buelow JM . A correlational study of disabilities, stressors and coping methods in victims of multiple sclerosis . J Neurosci Nurs . 1991;23(4):247–252
  25. Nezu AM , Nezu CM , Blissett SE . Sense of humor as a moderator of the relation between stressful events and psychological distress (a prospective analysis) . J Pers Soc Psychol . 1988;54(3):520–525
  26. Sullivan T , Weinert C , Cudney S . Management of chronic illness (voices of rural women) . J Adv Nurs . 2003;44(6):566–574
  27. Walton J . Spirituality of patients recovering from an acute myocardial infarction. A grounded theory study . J Holist Nurs . 1999;17(1):34–53
  28. Savage LS , Canody C . Life with a left ventricular assist device (the patient’s perspective) . Am J Crit Care . 1999;8(5):340–343
  29. Albaugh JA . Spirituality and life-threatening illness (a phenomenologic study) . Oncol Nurs Forum . 2003;30(4):593–598
  30. Howard MA , Duvall D , Terrell DR , Christopher AT , Thomas I , Holloway N , et al.   A support group for patients who have recovered from thrombotic thrombocytopenia purpura—a hemolytic uremic syndrome (TTP-HUS) (the six year experience of the Oklahoma TTP-HUS Study Group) . J Clin Apheresis . 2003;187(1):16–20
  31. Hildingh C , Fridlund B . Patient participation in peer support groups after a cardiac event . Br J Nurs . 2001;10(20):1357–1363
  32. Stewart M , Davidson K , Meade D , Hirth A , Weld-Viscount P . Group support for couples with a cardiac condition . J Adv Nurs . 2001;33(2):190–199
  33. Stewart M , Davidson K , Meade D , Hirth A , Makrides L . Myocardial infarction (survivors’ and spouses’ stress, coping, and support) . J Adv Nurs . 2000;31(6):1351–1360
  34. Ricciardi MJ , Rubenfire M . How to manage primary pulmonary hypertension . Postgrad Med . 1999;105(3):45–56
  35. Rubin LJ , Barst R , Galie N . Pulmonary hypertension roundtable: inside the new era in treatment: three experts analyze the growing spectrum of therapy and future strategies . Advances in Pulmonary Hypertension . 2002;1(1):17–23

PII: S0147-9563(04)00136-0

doi: 10.1016/j.hrtlng.2004.06.010

Heart & Lung: The Journal of Acute and Critical Care
Volume 34, Issue 2 , Pages 99-107 , March 2005

Article Tools